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    Toward unrestricted use of public genomic data

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    Type
    Article
    Authors
    Amann, Rudolf I.
    Baichoo, Shakuntala
    Blencowe, Benjamin J.
    Bork, Peer
    Borodovsky, Mark
    Brooksbank, Cath
    Chain, Patrick S. G.
    Colwell, Rita R.
    Daffonchio, Daniele G.
    Danchin, Antoine
    de Lorenzo, Victor
    Dorrestein, Pieter C.
    Finn, Robert D.
    Fraser, Claire M.
    Gilbert, Jack A.
    Hallam, Steven J.
    Hugenholtz, Philip
    Ioannidis, John P. A.
    Jansson, Janet K.
    Kim, Jihyun F.
    Klenk, Hans-Peter
    Klotz, Martin G.
    Knight, Rob
    Konstantinidis, Konstantinos T.
    Kyrpides, Nikos C.
    Mason, Christopher E.
    McHardy, Alice C.
    Meyer, Folker
    Ouzounis, Christos A.
    Patrinos, Aristides A. N.
    Podar, Mircea
    Pollard, Katherine S.
    Ravel, Jacques
    Munoz, Alejandro Reyes
    Roberts, Richard J.
    Rossello-Mora, Ramon
    Sansone, Susanna-Assunta
    Schloss, Patrick D.
    Schriml, Lynn M.
    Setubal, Jogo C.
    Sorek, Rotem
    Stevens, Rick L.
    Tiedje, James M.
    Turjanski, Adrian
    Tyson, Gene W.
    Ussery, David W.
    Weinstock, George M.
    White, Owen
    Whitman, William B.
    Xenarios, Ioannis
    KAUST Department
    KAUST
    Date
    2019
    Permanent link to this record
    http://hdl.handle.net/10754/670086
    
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    Abstract
    Despite some notable progress in data sharing policies and practices, restrictions are still often placed on the open and unconditional use of various genomic data after they have received official approval for release to the public domain or to public databases. These restrictions, which often conflict with the terms and conditions of the funding bodies who supported the release of those data for the benefit of the scientific community and society, are perpetuated by the lack of clear guiding rules for data usage. Existing guidelines for data released to the public domain recognize but fail to resolve tensions between the importance of free and unconditional use of these data and the “right” of the data producers to the first publication. This self-contradiction has resulted in a loophole that allows different interpretations and a continuous debate between data producers and data users on the use of public data. We argue that the publicly available data should be treated as open data, a shared resource with unrestricted use for analysis, interpretation, and publication.
    Citation
    Amann, R. I., Baichoo, S., Blencowe, B. J., Bork, P., Borodovsky, M., Brooksbank, C., … Xenarios, I. (2019). Toward unrestricted use of public genomic data. Science, 363(6425), 350–352. doi:10.1126/science.aaw1280
    Sponsors
    The viewsexpressed in thispaperarethoseof theauthors and do not reflect theiraffiliated centers or anysponsoring federalagencies.M.B.is supported byNIHR01GM128145. P.H. isco-founder,board member,and equityholder of Microba. K.T.K. is supported byNSF1759831.F.M.is supported byNIH 1R01AI123037-01 and NSF1645609.C.A.O.is supported by Elixir-GR (MIS#5002780)which is funded bytheOperational Programme NSRF2014-2020andcofinancedbyGreece and the European Union.A.A.N.Pis an advisor to LunaDNALLC, Synthetic Genomics and a consultant atOakRidge National Lab.K.S.P.isa consultant forTenaya Therapeutics,Phylagen, and uBiome.
    Publisher
    American Association for the Advancement of Science (AAAS)
    Journal
    SCIENCE
    DOI
    10.1126/science.aaw1280
    Additional Links
    https://www.sciencemag.org/lookup/doi/10.1126/science.aaw1280
    https://repository.helmholtz-hzi.de/bitstream/10033/622187/1/Amann%20et%20al.pdf
    ae974a485f413a2113503eed53cd6c53
    10.1126/science.aaw1280
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